At the end of each year, I take a moment to reflect on our community and all that we have accomplished together. It’s been a couple of hard years for everyone, everywhere. And by hard, I mean traumatic. Your world and life have been unsettled and that’s before we consider preeclampsia, eclampsia, HELLP syndrome, and the consequences suffered from it. I hope that you take a moment to acknowledge all of that and give yourself and your loved one's grace.
A year in review, as the ONLY hypertensive disorders of pregnancy patient support community facilitated by trained preeclampsia peer-educators. Besides helping mamas sleep at night by answering your questions...
we grew by over 12,000 members this year
we answered 14,000+ posts
moderated 186,000 comments
and 496,000 reactions to your posts.
THAT IS ALL OF YOU TOUGH MAMAS TAKING BACK YOUR HEALTHCARE & YOUR POWER and supporting each other. Knowledge is power!
we became a Member of SMFM.org (Society for Maternal-Fetal Medicine) in 2021 in order to bring you more resources, links to research and important updates
we were invited to be a Member of the Stakeholder Advisory Board for the Institute for Clinical and Translational Science and have been honored to learn and contribute to the process of turning observations in the laboratory, clinic, and community into interventions that can help patients like you and me
we launched our Perinatal Quality Care Collaborative Patient Advisor Collective as a support resource for those PQC organizations and our members who are or wish to be involved with their local state-wide maternal healthcare improvement initiatives. Check out this easy way to get involved
we became more active with our website www.EndPreeclampsia.org and began adding swag to support our organization, our programs, and the families we serve. Check out our awareness stickers
I’d like to say a special word of thanks to my Admin partner Jennifer Hohulin Heiniger and our Senior Moderators Sara Owens, Paula González-Álvarez, and Anna Hollywood for the SIGNIFICANT amount of time and dedication they have for all of YOU and this group. Together with the rest of the phenomenal moderator team, we complete a ton of tasks behind the scenes. We discuss each of your situations, follow your stories (through multiple babies, losses, rainbows, and health issues), research to give you the most appropriate answers, create graphics and write content, translate questions and answers (languages and medical-speak), and provide love and support. We also have a whole team of Approval Moderators who help keep the group a safe space by vetting member requests, keeping an eye on posts for spammers. It takes thousands of hours from our volunteers for this group to be available.
PLEASE take a moment to reflect on how the modmins have impacted your journey here and let them know that you appreciate them, and consider making a donation to the group in their honor (remember we are all 100% volunteers): https://www.endpreeclampsia.org/product-page/donate
What do we have in store for 2022??!
We’ve added virtual classes and one-on-one coaching and support options for those wanting more individualized support.
Join our Mailing List for free to get exciting updates and announcements, notifications of events and classes ,FB Events, video chat rooms, and interviews!
AND THE MOST IMPORTANT update for 2022…
RESEARCH! This is an IRB-approved research study. Researchers at the University of Iowa are trying to learn more about the hospital experience of people who had preeclampsia, eclampsia, or HELLP. regardless of where you live. We would greatly appreciate your help by completing this survey about
your most recent pregnancy in which you experienced any of these conditions. We will use the results of this survey to design new programs to help improve the experience of birth persons. Complete the Survey here
Thank you for all your support in 2021! We look forward to serving you in 2022!